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	<title>State of Health Blog from KQED News &#187; Prognosis</title>
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		<title>Predicting Prognosis</title>
		<link>http://blogs.kqed.org/stateofhealth/2012/01/11/predicting-prognosis/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=predicting-prognosis</link>
		<comments>http://blogs.kqed.org/stateofhealth/2012/01/11/predicting-prognosis/#comments</comments>
		<pubDate>Thu, 12 Jan 2012 00:48:22 +0000</pubDate>
		<dc:creator>Lisa Aliferis</dc:creator>
				<category><![CDATA[Policy]]></category>
		<category><![CDATA[eprognosis.org]]></category>
		<category><![CDATA[Prognosis]]></category>

		<guid isPermaLink="false">http://blogs.kqed.org/stateofhealth/?p=1988</guid>
		<description><![CDATA[        <media:content url="http://blogs.kqed.org/stateofhealth/files/2012/01/eprognosis_org2.jpg" medium="image" />
In yesterday's post about prognostic indexes reviewed in JAMA, I mentioned in passing that researchers had put all the 16 existing indicators into one online resource, eprognosis.org. While it's intended for doctors, it's freely available to anyone.

Today, Paula Span, editor of the terrific New Old Age blog at the New York Times pointed her readers directly to eprognosis.org. In the comments section, some of the readers said they were happy to have this tool, some found it distasteful, and several others said they couldn't figure out how to use it. <a href="http://blogs.kqed.org/stateofhealth/2012/01/11/predicting-prognosis/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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			<content:encoded><![CDATA[<p>In yesterday&#8217;s post about <a title="http://blogs.kqed.org/stateofhealth/2012/01/10/diagnosis-treatment-and-maybe-a-prognosis/" href="http://blogs.kqed.org/stateofhealth/2012/01/10/diagnosis-treatment-and-maybe-a-prognosis/" target="_blank">prognostic indexes reviewed in JAMA</a>, I mentioned in passing that researchers had put all the 16 existing indicators into one online resource, <a title="www.eprognosis.org" href="www.eprognosis.org" target="_blank">eprognosis.org</a>. While it&#8217;s intended for doctors, it&#8217;s freely available to anyone.</p>
<p>Paula Span, editor of the <a title="www.nytimes.com" href="www.nytimes.com" target="_blank">New York Times</a>&#8216; terrific <a title="http://newoldage.blogs.nytimes.com/2012/01/10/how-long-until-the-end/#postComment" href="http://newoldage.blogs.nytimes.com/2012/01/10/how-long-until-the-end/#postComment" target="_blank">New Old Age </a>blog didn&#8217;t hold back. She pointed her readers directly to eprognosis.org. In the comments section, some of the readers said they were happy to have this tool, some found it distasteful, and several others said they couldn&#8217;t figure out how to use it.</p>
<p>I, too, initially had found it confusing. But since there seems to be a lot of interest, here&#8217;s a quick explainer.</p>
<p>First, a screen grab of the site&#8217;s home page:</p>
<div id="attachment_1989" class="wp-caption aligncenter" style="width: 630px"><a href="http://blogs.kqed.org/stateofhealth/files/2012/01/eprognosis_org2.jpg"><img class="size-large wp-image-1989" title="www.eprognosis.org" src="http://blogs.kqed.org/stateofhealth/files/2012/01/eprognosis_org2-620x758.jpg" alt="www.eprognosis.org" width="620" height="758" /></a><p class="wp-caption-text">www.eprognosis.org</p></div>
<p><span id="more-1988"></span>Each of those 16 blue bubbles is a separate index. Now, look in the upper right corner, &#8220;settings filter.&#8221; Select the setting that matches your situation. (You will have to go to the website, I unfortunately can&#8217;t capture interactivity here).</p>
<p>Are you hospitalized (&#8220;Inpatient&#8221;)? Or living at home? (&#8220;Community&#8221;). Select only one. Then some of the blue bubbles will disappear. Only the indexes which were designed for people in the hospital or people living at home, depending on what you chose, will remain.</p>
<p>Next select just one of the blue bubbles. A series of questions will appear. Every index first asks if you are a healthcare professional. You must select &#8220;yes&#8221; to fill out the index. The site does not require any validation.</p>
<p>For the purpose of this exercise, I selected age 80-84, male, and then answered &#8220;no&#8221; for every question.</p>
<div id="attachment_2007" class="wp-caption aligncenter" style="width: 564px"><a href="http://blogs.kqed.org/stateofhealth/files/2012/01/Screen-Shot-2012-01-11-at-3.58.03-PM.png"><img class="size-full wp-image-2007" title="(www.eprognosis.org)" src="http://blogs.kqed.org/stateofhealth/files/2012/01/Screen-Shot-2012-01-11-at-3.58.03-PM.png" alt="(www.eprognosis.org)" width="554" height="527" /></a><p class="wp-caption-text">(www.eprognosis.org)</p></div>
<p>From here you will get an estimated risk of mortality over the next three or five or ten years, depending on the index you have chosen.</p>
<p>There&#8217;s a big caveat here. Remember that the researchers said all of these 16 indexes were imperfect, in one way or another. They stress that this site should only be used as one tool. In fact, at the top right of the eprognosis.org home page are three &#8220;usefulness&#8221; bubbles. The researchers who created this site are asking doctors to let them know how useful the index is at the time they use it. With more information about usefulness, the indexes can, hopefully, be improved. For now, as people use it, the bubbles will get larger or smaller, depending on whether doctors found it useful or not.</p>
<p>Again, the goal is improved decision-making in elderly patients. These indexes are not crystal balls. That&#8217;s where the &#8220;usefulness&#8221; comes in. Did the index help guide decision-making in an effective way?</p>
<p>Back at the <em>New Old Age</em> blog, some of the readers who were able to use the tool thought the information could have helped them make better medical decisions, like this person:</p>
<blockquote><p>I do think that this is highly useful &#8212; for instance, when my mother in law had a catastrophic stroke at the age of 82 it might have been nice to know that all the hyper rigorous efforts that were then being made to control her diabetes were likely too little too late, and it would have been okay to let her enjoy a more varied diet without feeling like we were killing her.</p></blockquote>
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			<media:title type="html">www.eprognosis.org</media:title>
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			<media:title type="html">(www.eprognosis.org)</media:title>
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		<title>Diagnosis, Treatment &#8230; and Maybe a Prognosis?</title>
		<link>http://blogs.kqed.org/stateofhealth/2012/01/10/diagnosis-treatment-and-maybe-a-prognosis/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=diagnosis-treatment-and-maybe-a-prognosis</link>
		<comments>http://blogs.kqed.org/stateofhealth/2012/01/10/diagnosis-treatment-and-maybe-a-prognosis/#comments</comments>
		<pubDate>Tue, 10 Jan 2012 23:50:45 +0000</pubDate>
		<dc:creator>Lisa Aliferis</dc:creator>
				<category><![CDATA[Policy]]></category>
		<category><![CDATA[Elderly]]></category>
		<category><![CDATA[Prognosis]]></category>

		<guid isPermaLink="false">http://blogs.kqed.org/stateofhealth/?p=1920</guid>
		<description><![CDATA[Back in the days when modern medicine started, around the turn of the 20th century, the practice of medicine was roughly divided into  thirds: diagnosis, treatment and prognosis.

That's what Alexander Smith, palliative care expert at the San Francisco VA Hospital, told me in an interview. He attributed the approach to the illustrious William Osler, one of the founding professors of Johns Hopkins Hospital, back in the late 19th century. <a href="http://blogs.kqed.org/stateofhealth/2012/01/10/diagnosis-treatment-and-maybe-a-prognosis/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
				<content:encoded><![CDATA[<div id="attachment_1942" class="wp-caption alignright" style="width: 310px"><a href="http://blogs.kqed.org/stateofhealth/files/2012/01/StetoscopeAdrianClark.jpg"><img class="size-medium wp-image-1942" title="(Adrian Clark: Flickr)" src="http://blogs.kqed.org/stateofhealth/files/2012/01/StetoscopeAdrianClark-300x300.jpg" alt="(Adrian Clark: Flickr)" width="300" height="300" /></a><p class="wp-caption-text">(Adrian Clark: Flickr)</p></div>
<p>Back in the days when modern medicine started, around the turn of the 20th century, the practice of medicine was roughly divided into  thirds: diagnosis, treatment and prognosis.</p>
<p>That&#8217;s what <a title="http://geriatrics.medicine.ucsf.edu/facstaff/smith.html" href="http://geriatrics.medicine.ucsf.edu/facstaff/smith.html" target="_blank">Alexander Smith</a>, palliative care expert at the San Francisco VA Hospital, told me in an interview. He attributed the approach to the illustrious William Osler, one of the founding professors of <a title="http://www.hopkinsmedicine.org/about/" href="http://www.hopkinsmedicine.org/about/" target="_blank">Johns Hopkins Hospital</a>, back in the late 19th century.</p>
<p>But things have changed since Dr. Osler ruled in Baltimore. &#8220;Prognosis has really waned,&#8221; Smith says. &#8220;Now in textbooks, there&#8217;s just a few lines. The focus is on diagnosis and treatment.&#8221;</p>
<p><span id="more-1920"></span>Smith and a handful of colleagues are trying to refocus doctors and other clinicians on prognosis in older patients. But it looks like he has a long way to go. In today&#8217;s <a title="http://jama.ama-assn.org/content/307/2/182.full" href="http://jama.ama-assn.org/content/307/2/182.full" target="_blank">Journal of the American Medical Association</a>, Smith and his colleagues assess the efficacy of 16 different ways to measure prognosis. Unfortunately, the authors find that all of them are lacking in one way or another. Failure to consider prognosis is a problem, they argue, because it can lead to poor care.</p>
<p>&#8220;Prognosis is a critically important piece of information for decision-making in the elderly,&#8221; Smith said. &#8220;For most preventive measures, the harms occur up front, but the benefits don&#8217;t accrue for years.&#8221;</p>
<p>One case in point is the colonoscopy. &#8220;There&#8217;s an immediate risk of intestinal perforation. It sounds awful and it is. While uncommon, it&#8217;s horrific when it happens.&#8221; While colonoscopies are great at finding very early colon cancers, that&#8217;s what they are, very early. This is where overall prognosis comes in. As people get older, their likelihood of dying <em>with</em> and not <em>of</em> a particular cancer goes up, so why subject patients to screening tests?</p>
<p>This isn&#8217;t a question just of a patient&#8217;s age, which is what doctors call a &#8220;blunt instrument.&#8221; A better way to measure prognosis, Smith said, would be to add in other factors, &#8220;like what other medical conditions a patient has, what functional status a patient has, like walking, bathing, calculating checkbooks, what cognitive impairment they have.&#8221;</p>
<p>Smith and his colleagues have taken the 16 current imperfect tools that measure prognosis and put them together in a new website, <a title="http://www.eprognosis.org/" href="http://www.eprognosis.org/" target="_blank">www.eprognosis.org</a>, specifically for doctors and other health care workers. The goal is for doctors to use the individual tools and then rate them on usefulness. But doctors should use the information as one tool, in combination with discussions with patients and their patients&#8217; preferences.</p>
<p>Still, Smith stressed that doctors tend to be optimistic when estimating prognosis, and the better they know the patient, the more optimistic they become.</p>
<p>&#8220;If a patient has the information, then patients and doctors are more likely to make choices that are sensible. They are less likely to pursue tests and treatments that are likely to be harmful and they can shift priorities to other things like maintaining mobility and independence.&#8221;</p>
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