Intellectual Disability

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Who Gets an Organ Transplant?

(Magnus D: Flickr)

(Magnus D: Flickr)

January 18, 2012: This post has been updated to reflect the family will meet with the hospital.

The story of a three-year-old girl, Amelia Rivera, who was apparently denied a kidney transplant last week at Children’s Hospital of Philadelphia (CHOP) has sparked outrage and debate. Amelia’s mother, Chrissy, asserts that a CHOP doctor said Amelia was being denied because she is “mentally retarded.”

Amelia suffers from a rare genetic defect, Wolf-Hirschhorn syndrome, which results in severe developmental delays, a characteristic facial appearance, intellectual disability and seizures. Continue reading