Kaitlyn Pintor visits with horses at Hoof Beats riding school in Petaluma. For the past decade, a nerve disorder has made it painful for her to experience touch. (Ryder Diaz/KQED)
Editor’s Note: As part of our ongoing series of first-person health profiles called “What’s Your Story?” we hear from Kaitlyn Pintor, whose nerve disorder causes pain so severe that she’s often felt like her body has been set on fire. When the pain started nearly a decade ago, Pintor was a single mother of two. She still found time to organize support groups for people who share her chronic pain disorder. Now, a new medication has made her chronic pain more manageable. Pintor speaks to us from HoofBeats riding school in Sonoma County, where she goes for horse therapy. Reporter: Ryder Diaz.
By Kaitlyn Pintor
In 2004, I was diagnosed with Reflex Sympathetic Dystrophy after an ankle sprain. I had burning pain that ended up spreading throughout my body, from head to toe.
It literally feels like you’ve been set on fire and you can’t turn the fire down. Just water brushing over my skin would cause intense flame.
The normal comforts don’t comfort you. You can’t wrap yourself in a blanket. You can’t go soak in the sun. Sounds bother you. Or the laughter of your children may turn your pain up. Continue reading
(Photo: Paul Bradbury)
The numbers are staggering. One hundred and sixteen million Americans experience pain that can last from weeks to years. Costs of treatment and lost wages total between $560 and $635 billion each year. Yet treatment does not always relieve a patient’s suffering.
In a Perspective published today in the New England Journal of Medicine, researchers outline how significant the problem of pain is in the U.S. and suggest approaches for more effective therapy. The piece recaps last year’s Institute of Medicine Report, Relieving Pain in America.
The writers say that undertreated acute and chronic pain is a “significant overlooked problem.” Dr. Phil Pizzo, Dean of Stanford’s Medical School, is co-author of today’s Perspective and led the IOM committee that reviewed the issue last year. In an interview, he described that both patients and doctors have differing approaches to pain and how to manage it. Some patients feel they need to tough it out. Others need someone to listen and work with them. Doctors may be either caring or judgmental about a patient’s pain. Continue reading